The Fight
In this expressive poem, Dr. Diana Early gives an authentic voice to the experiences of parents of children born with Down syndrome. Drawing upon her research into the lives of families, she chronicles “the fight” these parents endure to gain what others take for granted.
Editorial: “The Thicket of Life”
Download the article (pdf) Table of Contents The “thicket of life.” This metaphor resonates deeply with me as I struggle under the weight of unanswered emails, overdue tasks, and demands for my attention from every angle. Searching for a salve to calm the self-judgment around missed deadlines and unmet expectations, I always return to the […]
Gutted
Tiffany Bystra reflects on the peculiar path of her illness journey, which has led to a trail of recovery that feels both disappointing and thrilling. In this powerful and humbling poem, she provides rich insight into how it feels to taste both the sweetness and the tartness of life in the same moment.
The Intouchables Revisited: Shifting Perspectives With our Dynamic Society
We present our first set of paired articles—the previously published The Intouchables–A Reflection on Disability and Caregiving: Who Helps Whom? and a new piece, Intouchables Revisited: Shifting Perspectives With our Dynamic Society, both by Dr. Sarah Caston. The author re-visits her previous article with a fresh perspective.
On her own journey to revisit this piece, Caston invites us into this “space of curiosity,” to question our long-held presumptions, and rethink words like independence, autonomy, and flourishing. She asks us to ponder what it means to “relinquish…our power in order to empower.” We present both her original review and her current commentary together, to observe the process of critical thinking–and re-thinking–and to perhaps prompt us to do so in our own work.